“Today we know that the80% of pediatric tumors are cured. However, today is not a day to celebrate anything. World Pediatric Cancer Day calls everyone to to reflect, to question ourselves to take stock of where we have arrived and where we need to go. I am speaking to an audience of parents who reject the association between an illness as serious and demanding as oncology and a child, there is nothing more difficult to accept”. Thus the vice-president of the Chamber, Giorgio Mulè, at the opening of the works of the conference 'National network of rare tumors: critical issues and prospects for pediatric oncohematology', promoted and organized by the Italian Federation of pediatric oncohematology parents and recovered associations (Fiagop), on the occasion of the 23rd World Day against pediatric cancer, which was held this morning in the Queen's Hall of the Chamber of Deputies.
“And yet – he continued – parents and family members demonstrate, also thanks to structures like Fiagop, that they know how to deal with all this, but they need to be taken by the hand and that the civil community of the country is alongside them. For this reason – he recalled – the National Network of Rare Tumors was born, a fundamental institution that needs to integrate with the regional Oncology Network”.
Regarding the Regions, Mulè remarked that “they must be encouraged. Today we invited the representatives of the Regions precisely to stimulate this interaction: out of 20 invitations, 18 remained a dead letter and only 2 responded saying that they could not be present. The network is there is, the 'fish' are missing, which are precisely the Regions: they are the ones who must implement what the minister is doing at central level”. “There is a need linked to hospital pediatrics and local pediatrics – concluded Mulè – and it is only with this local network that the care system can be integrated, offering what is necessary from the point of view of quality guarantees” .
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