The law that aims to improve the quality of life of people with amyotrophic lateral sclerosis (ALS) saved its last process in the Senate on Wednesday. The mayor of La Roda and socialist senator Juan Ramón Amores brought to the chamber the voice of the associations, the sick and their families in an emotional celebration speech: “I am not going to rest until the law reaches every sick person as soon as possible. need it, anywhere in the country and with the same rights,” he stated.
“Believe me, ladies and gentlemen, today I feel tremendously fortunate to be able to give voice to those who can no longer speak, to give feeling to those who live locked in their body, to explain the benefits of this law for people who have been separated from society. Believe me, I know how you feel,” he began.
The mayor of La Roda explained that he was 38 years old when he was diagnosed with ALS, on November 13, 2015. “I thought I was invincible. I guess, like most of you, I thought about my future non-stop and the future of my family. And I asked myself: why me? But why not me? , and why not you? ALS is going to hunt down three people today; And, worst of all, why not to a close person, a loved one? Therefore, because here every day I hear many insults and disrespect, I tell you one thing: today we are a single voice; and that is wonderful,” he explained.
“If this law arrives late, at least I am not going to rest until the law reaches every patient who needs it as soon as possible, anywhere in the country and with the same rights. Thank you. I promise you that I will not rest. “Long live life!” he concluded.
The text was the result of an unprecedented agreement between PP, PSOE, Sumar and Junts after two and a half years of fruitless negotiations, different proposals and interrupted procedures. Congress unanimously approved the law in one of the few moments of consensus during a turbulent legislature without majorities. The Senate has given the final approval to the text as planned: without amendments.
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