The diagnosis of diseases of genetic origin is delayed between 6 and 7 years due to lack of specialists
Professionals go to the European Parliament to ask for regulation in the country, the only one in the EU without it
Víctor is a 16-year-old teenager who has Tatton-Brown-Rahman syndrome, a rare disease that causes, among other things, hypergrowth. Until he was 7 or 8 years old there were no features on his face that indicated that he could suffer from it, so…
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#odyssey #patients #absence #genetics #specialty
