,,I’m in pain all day long”, Suzanne de Bruin sighs. The resident of Krimpen aan den IJssel has EDS (the Ehlers-Danlos Syndrome), a rare disorder of the connective tissue in which joints can suddenly dislocate and organs fail. “In the Netherlands, five thousand people have it. It is a progressive and hereditary condition. I can live to 100 with it, but the question is in what condition.”
#Suzanne #longer #allowed #walk #municipality #house #suitable #wheelchair