“The pathology registry is a systematic and organized collection of all data relating to a pathology and is extremely important for a number of factors – such as the fact that – it improves knowledge of the pathology itself. In fact, it can give us information on the frequency, incidence, prevalence and natural history of the disease and also the prognostic factors.” These are the words of Rita Carlotta Santoro, president of the Italian Association of Hemophilia Centers – Aice, in a message addressed to FedEmo-Federation of Hemophilia Associations as part of the conference “I count! Mec: the pathology register and health data, fundamental knowledge and planning tools”, promoted on the occasion of the XX World Haemophilia Day which is celebrated throughout the world on 17 April.
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