Rare diseases: Riva (Cnel), “Activate hearings to coordinate the data entry process on haemophilia patients in the Mec register”

“The CNEL, as a consultative body of the State, can activate hearings in which to coordinate this type of activity (facilitate a complete transfer of data from the Regions to the Higher Institute of Health and then with consequent management of the register)”. This was stated by Francesco Riva, councilor of the National Council of Economy and Labor – Cnel, in a message addressed to FedEmo-Federation of Haemophilia Associations as part of the conference “I count! Mec: the pathology register and health data, fundamental knowledge and planning tools”, promoted on the occasion of the XX World Haemophilia Day which is celebrated throughout the world on 17 April.