Canadian singer Céline Dion presents the Album of the Year award on stage during the 66th Grammy Awards at the Crypto.com Arena in Los Angeles on February 4, 2024. (Valerie Macon)
Canadian pop megastar Celine Dionwho suffers from a rare neurological disorder, said he is doing well, but who takes life “one day at a time”, in his first interview since announcing the diagnosis that caused him to put aside his career.
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Celine Dion56 years old, revealed for the first time in 2022 that she had been diagnosed with a strange neurological condition known as stiff person syndrome (SPR), which causes muscle stiffness in the torso, with acute pain and mobility difficulties.
Cover star of French Vogue's May issue, Dion told the magazine that she is “doing well” but that her condition requires “a lot of work.”
“Five days a week I undergo athletic, physical and vocal therapy,” said.
“I have not defeated the disease, since it is still inside me and always will be. I hope there is a miracle, a way to cure it with scientific research, but for now I have to learn to live with it,” he explained.
There is no cure for stiff person syndrome. It is progressive, but treatment can help control symptoms. According to the United States National Institutes of Health, it affects women twice as often as men.
In May of last year, Dion canceled a series of concerts scheduled for 2023 and 2024, not feeling strong enough to go on tour.
Asked about her ability to return to the stage, Dion told Vogue France that she cannot answer that at the moment.
“I don't know (…) My body will tell me.”
Dion made a surprise appearance at the Grammy Awards in February, when she presented the Album of the Year award to Taylor Swift.
In January, Dion announced that she would make a documentary, which would air on Amazon Prime Video, about her illness to help raise public awareness.
Dion has sold more than 250 million records during her decades-long career.
The Quebec-born star's “Courage World Tour” began in 2019, more than three years after her manager and longtime husband, Rene Angelil, died at age 73.
Dion had completed 52 shows before the Covid-19 pandemic put the rest on hold.
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