During the conference ‘Psoriasis: chronicity and patient needs‘, held today in Rome at the Chamber of Deputies, was presented the first Italian Alliance for patients with psoriasis. The Alliance aims to develop an organic and lasting action, raising the awareness of the Government and institutions, to direct health policy choices towards an ever greater availability of truly effective and innovative solutions, both at an organizational and therapeutic level.
“The 2 million people who struggle with psoriasis every day, 500,000 of them severe, have the right to find adequate support to obtain access to adequate diagnosis and treatment for a pathology that generates great suffering and that involves limitations in daily life, with particular regard to interpersonal relationships. New health policy measures are urgently needed – he said Valeria Corazzapresident of the Association of Italian psoriasis friends of the Corazza Foundation (Apiafco) – Measures which, also due to an incomprehensible institutional distraction, have been lacking up to now and which must now be requested with the convergent commitment of the scientific community, the advocacy world and civic organizations “.
President Apiafco’s appeal was picked up and relaunched by the health policy magazine ‘Italian Health Policy Brief’ and to this end, thanks also to the non-conditioning contribution of Ucb Pharma, the Italian Alliance for people with psoriasis was born. the scientific societies Sidemast and Adoi and the Italian laboratory for the analysis, innovation and change of health and social policies, Salutequità, are launched. During the presentation event, some parliamentarians who have already shared the aims of the Alliance have also publicly signed the ‘Call to action: Psoriasis, the need does not hide‘, document developed in five points, in which the objectives of the project and the relative actions to achieve them are indicated.
“The first goal we set ourselves is to otkeep the inclusion of the pathology, in its various forms and manifestations, in the National Chronicity Plan“, the NCP, underlined Tonino Aceti, president of Salutequità. “A fact that – he added – would represent a fundamental prerequisite for a swift and organic care of patients according to homogeneous and consolidated procedures, as well as in line with the need to guarantee multidisciplinary assistance where necessary”. Precisely in relation to the NCP, the ambition of the Psoriasis Alliance is to immediately favor the formation of a clear picture of the care of people with psoriasis, also by stimulating the presentation of parliamentary questions to find out the orientation of the Government.
“Today we clinicians have tools and therapies that, thanks to innovation, allow us to fight psoriasis with positive levels of response that were unthinkable until a few years ago – he declared. Ketty Perispresident of the Italian Society of Medical, Surgical, Aesthetic Dermatology and Sexually Transmitted Diseases (Sidemast) – It is not acceptable that such an important greater therapeutic potential can be largely compromised by organizational and managerial deficiencies which could be overcome by following up on the requests coming from both patients and the scientific community. It is also for this reason that we have decided to join the Alliance with conviction and to promote the recognition of the value of innovative therapeutic solutions, capable of raising the standard of treatment and achieving more effective clinical outcomes “.
“Psoriasis – he recalled Francesco Cusano, president of the Italian Hospital Dermatologists Association (Adoi) – is a chronic inflammatory skin disease, from which unfortunately it is not possible to definitively cure and which, therefore, must be controlled with the best therapeutic means but also with adequate organizational systems. Precisely for this reason it is necessary that our health system urgently equips itself with an organizational-managerial approach which, in addition to the logic of chronicity, is also based on guidelines and diagnostic-therapeutic paths updated and specifically based on individual realitiesin a general vision that foresees a homogeneous diffusion of the welfare requirements throughout the national territory “.
By joining the Call to Action proposed by the Psoriasis Alliance, the senator Paola Boldrini pointed out that “with the establishment of a parliamentary intergroup on chronicity, which I have the honor of chairing, we have first of all understood strengthen the political action of the Parliament which has the duty to listen to the demands and health needs of citizens / patients suffering from psoriasis. Upon completion of the cycle of hearings we have had, I hope to soon be able to draw up a final document that can stimulate the Government and Parliament to evaluate in a short time an update of the NCP “.
Words also taken up by the honorable member Vito De Filippowho said he “welcomed with particular interest the establishment of the Alliance for people with psoriasis because I believe it is only through active collaboration between patients and scientific societiesto which politics must heed, that it will be possible to decisively raise institutional attention on such an important issue. The hope is that, together with the Psoriasis Alliance, the indispensable health policy responses can be reached to guarantee people with psoriasis a management by the national health system that finally takes due account of the chronic nature of the disease “.
Lastly, the honorable Andrea Mandelliconfirming that he will present a question to the Minister of Health in addition to the motion already presented on the subject, he remarked that “the Covid-19 epidemic, with its dramatic complexity, bequeaths the country indispensable challenges. to rethink the structure of Italian healthcare. It is for this reason that I accept with conviction the appeal made by Apiafco, and by the Alliance it promoted, to work together with the aim of raising the level of attention on psoriasis and dermatological diseases, both in the political and institutional fields. Dramatically underestimated pathologies such as psoriasis deserve a different and new approach that considers the aspects related to chronicity, the repercussions on the social sphere, the impact on people’s quality of life. This is why I will ask that the motion on the subject, which was first signed by me, be scheduled as soon as possible by the Chamber “.
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