SLA stands for Amyotrophic lateral sclerosis and currently it seems to be at risk precisely because of the energy crisis that the world is experiencing in recent weeks. To say it is really Alberto Fontanatreasurer Aisla Onlus (Italian Association of Amyotrophic Lateral Sclerosis) that together with the president Nemo Clinical Centers, alarms the population. Especially those who, unfortunately, suffer from this disability.
“Technology, for those experiencing a disability, in particular for those with Amyotrophic Lateral Sclerosis (ALS), is essential. Technology allows us to do what the disease takes us away: it allows us to move, communicate, feel alive within our family, in our neighborhood. It is important that, together with clinical research, technological research continues its path to improve the equipment available and pursue a quality of life worth living “ declared the treasurer.
ALS and research at risk: what is best to do?
National ALS Day is celebrated on 18 September and for the occasion the importance of research is recalled. AISLA has therefore given way to a fundraiser to be held in the 150 Italian squares members and who are able to apply by filling out the form on the official website by September 30th. The fundraising will start with the sale of the bottles dedicated to the initiative, in the hope of raising a large amount of money to continue the research and beyond.
“The energy crisis is deeply worrying our families, who live with this disease. With the exploitation and the aids we give strength to our life because we breathe with the use of energy, we communicate and we move. Through our listening center we have received many requests for help and for this reason we have decided to allocate the entire collection of the National Day to give concrete economic support to families, to people with this disease “ Fontana concluded.
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