ALS, the needs of patients in Aisla’s ‘What Als Wants’ study

Promoted by AISLA, the Italian Amyotrophic Lateral Sclerosis Association, in collaboration with the Mario Negri Institute and the Ministry of Health

A study to better understand the needs of ALS patients and the caregivers who accompany them through the disease. Promoted by AISLA, the Italian Amyotrophic Lateral Sclerosis Association, in collaboration with the Mario Negri Institute and the Ministry of Health, is presented in a talk broadcast at 3pm on adnkronos.com. The tool that made the study possible ‘What Als Wants’ is the ALS Registry, a database that collects data on the disease history of ALS patients, with the aim of improving research and accelerating the development of new treatments. They talk about it Fulvia MassimelliPresident Aisla; Elisabetta PupilloHead of the Epidemiology of Neurodegenerative Diseases Unit at the Mario Negri Institute; Federica Cerri, Medical-Scientific Commission of AISLA and specialized ALS neurologist at the NeMO Clinical Center in Milan. They intervene Silvio GarattiniPresident of the Mario Negri Institute, e Guido Bertolaso, Welfare Councilor of the Lombardy Region. The Undersecretary of Health Marcello Gemmato sent a greeting message.