“Our commitment to the White Paper was born and derives from our mission for over 30 years: to transform the lives of people living with a rare disease and that of their loved ones who try to provide support to their families”. Thus Anna Chiara Rossi, vice president and general manager Alexion – AstraZeneca rare disease, on the sidelines of the final event of the 'Women in Rare – the centrality of women in rare diseases' campaign, conceived and promoted by the pharmaceutical company, together with Uniamo, with the participation of Fondazione Onda, Ets, EngageMinds Hub and Altems of the Catholic University. Held in the Senate of the Republic, the event was an opportunity to present 'Women and rare diseases: impact on life and expectations for the future', the first white paper containing information, qualitative investigations and testimonies from women, both patients and caregivers , who live with rare diseases.
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