“For over 20 years Biogen has been alongside people living with multiple sclerosis. We are convinced that our commitment must go beyond the therapeutic field to take care of people's needs at 360 degrees. 'I don't freak' is an example of the importance of this commitment of ours. Ten years ago, when we began” this adventure, “we started from the idea of creating a space for sharing and discussion for people who live with multiple sclerosis on a daily basis so that they could tell their stories in an authentic way and also listen to the stories and experiences of others. The great success it had, I would say, immediately confirmed the importance of this collective story precisely as a tool of mutual help and also as a vehicle of information and of awareness for people who live with the disease on a daily basis”. Ilaria Prato, Corporate Affairs Biogen Italia, said this at Adnkronos, for the tenth anniversary of the project developed by Biogen and Fondazione Onda, the national observatory on women's and gender health, in collaboration with the Italian Multiple Sclerosis Association (Aism) and with the patronage of the Italian Society of Neurology (Sin).
“The beauty of Io non sclero is precisely the authentic closeness to those who live with multiple sclerosis”, explains Prato. “It is the people of Io non sclero – which has effectively become a community – not multiple sclerosis, but the community of people who live with multiple sclerosis, who participate in the community every day with their contributions, who mark the evolution of this project. In recent years – he recalls – we have witnessed the continuous growth of this community which today includes almost 80 thousand people on Facebook. We have enthusiastically followed the sharing of hundreds and hundreds of testimonies and experiences, truly a mosaic. Today I don't freak out it is truly a mosaic of voices that show the authentic face of the disease in Italy and 2024 is a special year because Io non sclero turns 10”.
To celebrate this tenth birthday, concludes Prato, “we will carry out a series of initiatives, but above all we have launched the initiative called 'My greeting card', where we ask community participants to write a greeting message dedicated” to the community online “either to themselves or to a loved one, with the aim of celebrating this wonderful virtual family”.
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