The 2025 Agenda for Multiple Sclerosis and Related Pathologies will be presented at the Chamber of Deputies. AISM promotes an awareness campaign aimed at young people on TikTok: Appearances can be deceiving
Monday 30 May is celebrated in 70 countries the World Multiple Sclerosis Day (MS), one of the most serious chronic diseases of the central nervous system. For the occasion, several monuments will be illuminated in red. MS is the leading cause of neurological disability in young adults (so much so that we speak of a social emergency), with typical onset around the age of 30. It is estimated that it affects 2.8 million people worldwide, of which 1.2 million in Europe and around 133 thousand in Italy. The number of women with multiple sclerosis double that of men.
The Multiple Sclerosis Agenda
Just Monday 30 AISM (Italian Multiple Sclerosis Association) will present to the Chamber of Deputies the2025 Agenda for MS and Related Diseases: proposals in the field of health, inclusion, research, information, which are the result of the # 1000azionioltrelaSM project which lasted over a year. An Agenda founded on the rights of every patient, family member, caregiver, relaunched by a renewed one Charter of rights. A document that consolidates the 7 rights already sanctioned in 2014 (health, research, self-determination, inclusion, work, information, active participation), to which 3 new ones join: education and training, simplification, innovation. A charter that we ask to be signed by everyone because it is a pillar of the rights of people not only with MS, but of all those who live with a condition of disability, serious pathology, fragility, said Francesco Vacca, president of AISM.
The effects of the pandemic
Worrying data will be presented to the Chamber of Deputies (emerging from the Barometer of multiple sclerosis 2022), which photograph the trend in the levels of care, assistance and inclusion of people with MS or related diseases in Italy. Starting from effects of the Covid pandemic on the levels of social and employment inclusion: in Italy nine out of ten centers have activated or enhanced remote services, but half report problems due to inadequate IT equipment. Furthermore, only one in two patients obtain psychological support from the health system. Access to treatment is also still difficult: more than one in three patients does not receive free symptomatic drugs, essential for the treatment of the disease. Also on May 30, the Scientific Congress of FISM (Italian Multiple Sclerosis Foundation) kicks off, with the awarding of the Rita Levi Montalcini Prize.
The social campaign
Not only. On the occasion of the National MS Week (until 5 June), an information and awareness campaign is disseminated on the main social and TV channels: Appearances are deceiving, made with the support of Tik Toker as Giulia Sara Salemi to Charlie Moon, to Non sono Kristiano. The goal is to broaden knowledge about the disease by telling what it is and what it means to live with it. They bear their own testimony Gloria, Asia and Elisa, three young patients. Also on the AISM website (and social networks of the Association) the video The 10 things to know about multiple sclerosis is available.
How to donate
To contribute to AISM’s commitment, it is possible to make a donation through the number 45512. The funds raised will go to support the study on the impact of the pandemic on the lives of people with MS and the project on the implementation of the Italian Multiple Sclerosis and Related Diseases Registry, an essential tool for researching and organizing health and social services. The donation amounts are 5 or 10 euros with a call from a fixed network TIM, Vodafone, WindTre, Fastweb and Tiscali, 5 euros with a call from a fixed network TWT, Convergenze and PosteMobile and 2 euros with text messages from WindTre, TIM, mobile phones. Vodafone, Iliad, PosteMobile, CoopVoce and Tiscali.
May 29, 2022 (change May 29, 2022 | 08:53)
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