Over the weekend, the shareholders’ meeting of Aisla – the Italian amyotrophic lateral sclerosis association – approved the financial statements as of 31 December 2023, recording a surplus of 272,938 euros. Of these, 130 thousand euros were reserved for ‘relief operations’ and over 140 thousand euros allocated to the profit reserve. With a forecast increase of 30%, Aisla invested 1,718,552 euros in general interest activities in 2023, out of total proceeds of 2,551,073 euros. With a net worth of 4,587,447 euros, Aisla confirms a solid financial situation. All documents are available for online consultation (www.aisla.it).
The annual meeting – a note reports – saw the direct exercise of the vote by members forced to use the ocular communicator, precisely by virtue of the recent recognition by the Ministry of Justice of the right to non-verbal communication. The event made it possible to renew the National Board of Directors and discuss future prospects. The annual budget demonstrated positive results, thanks to the commitment of volunteers and donations. The transformation into an Association for Social Promotion (APS) was also approved. There were two days of intense work – the note reports – which involved volunteers from 64 Aisla offices and sections from 19 Italian regions.
The first day, dedicated to debate and discussion, in which the volunteers had the opportunity to share strategies in supporting patients with ALS and their families, concluded with the traditional social dinner, a moment of aggregation and celebration, present also the singer-songwriter Ron, testimonial of Aisla for over ten years, an association for more than 40 years committed to the protection, assistance and treatment of ALS patients, a neurodegenerative pathology that affects motor neurons and progressively limits muscular activity, leading to paralysis.
On Saturday 18 May, during an extraordinary session, the Members’ Assembly unanimously approved the new Statute of the association. The official signature – the note details – took place in the presence of the notary Clerici, with the filing of the deed together with the request for registration in the Single Register of the Third Sector (Runts) in the form of a Social Promotion Association (Aps). The Members’ Assembly also elected the 13 national councilors who will lead the association for the next three years. Under the leadership of Fulvia Massimelli, national president of Aisla in her second mandate, the newly elected Paolo Zanini will work (he will also be national vice-president); Pina Esposito (who was confirmed as general secretary); Antonello Palliotta (treasurer). They are joined by: Davide Rafanelli, Paola Rizzitano, Alessandra Collicelli, Antonio Bianco, Chiara Candela, Maurizio Colombo, Adele Ferrara, Alessandro Porcelli and Vincenzo Soverino. The Assembly also elected the Board of Auditors which will be composed of Aldo Occhetta, Mario Giusti and Paolo Masciocchi.
“Every page of our report tells extraordinary life stories and a community united by the unshakable hope of winning this battle – declares Massimelli – When we talk about Aisla, we talk about an organization that embodies the example of dialogue and positive impact in Italian society thanks to organized volunteering”.
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