“As Cittadinanzattiva we have for years promoted a network of associations of patients with chronic and rare pathologies, in particular we are very attentive towards autoimmune hemolytic anemia due to cold antibodies (Cad). We also thank Sanofi for the work done with the diary 'Una life without winter', because precisely because of its rarity, Cad is a pathology that is difficult to diagnose, difficult to manage, difficult for patients to live with and difficult for caregivers”. Thus Anna Lisa Mandorino, general secretary of Cittadinanzattiva, speaking today in Rome at the presentation of 'A life without winter', the diary that tells the desire of patients with Cad, born from an initiative by Sanofi in collaboration with FB&Associati, with the contribution of Cittadinanzattiva and Uniamo, the Italian Federation of rare diseases.
“CAD is a disease that mainly affects the elderly population who, let's not forget, has a fundamental role in our society – added Mandorino – Keeping together the testimonies of those who live with the disease with the critical issues that even health professionals bring to light , such as the recognition of this ultra-rare pathology, and the important role of caregivers, all of this seemed to us to be an interesting 'mix' to support also with our collaboration on the project, the aim of which is to promote greater knowledge of this pathology”.
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