For small babies and children who suffer from incurable diseases or are in the terminal phase, the goal is to fully implement the WHO recommendation
Perinatal palliative care (CPpn) has been fully activated in less than 10% of the birth centers in our country. what is announced by Sin, the Italian society of neonatology. This also depends on the difficulty of transferring the basic principles of palliative care to the perinatal setting, which in this case include both taking care of the woman during pregnancy, when the fetus affected by serious pathologies, and of the newborn in critical conditions and therefore hospitalized. in Neonatal Intensive Care (NICU), an environment very different from the pediatric hospice. If on the one hand the scientific and technological advances of recent years, with important relapses both from the diagnostic point of view during fetal life and from the assistance point of view in Neonatal Intensive Care (NICU), have made it possible to identify very early serious genetic congenital pathologies. malformations and successfully assisting infants of very low gestational age, on the verge of vitality, on the other hand highlighted the need for a structured project involving families and numerous professional figures. The CPpn are characterized precisely by the timing of their intervention, which includes both the prenatal and the neonatal period, says Luigi Orfeo, president of the Italian Society of Neonatology on the occasion of the National Day of Relief, which is celebrated on May 29 and which offers the opportunity to take stock of the current situation of Palliative Care (CP) and Pain Therapy (TD) in our country and in particular of those aimed at incurable children, from birth to adolescence.
For small babies and children who suffer from incurable diseases or are in the terminal phase, the goal is to fully implement the WHO recommendation, i.e. the active global care of the body, mind and spirit of the child and his / her family in the ‘quality of life perspective, with an emphasis on home care, the need for an interdisciplinary approach and the availability of an ad hoc residential response, i.e. a pediatric hospice. Pediatric Palliative Care (CPP) is not only the treatment of dying children, but begins from the moment of diagnosis, continues regardless of the continuation of the curative therapy and extends after death with support for the family in the elaboration of bereavement.
The development of this assistance modality in Italy was made possible by the enactment of Law 38 of March 15, 2010 Provision to guarantee access to palliative care and pain therapy which in Article 1.1 establishes the right of every citizen (and therefore also of all children of any age!) to access Palliative Care plus Pain Therapy and Art. 3.1 declares that these are priority objectives of the National Health Plan. Italy was the first and for a long time the only country to adopt an ad hoc law on CP and TD, a law that the UN has defined as a model law, a model to be imitated also by other countries. Law 38, recognizing the peculiarities of the pediatric age, dedicates a specific article, Article 5.2, to this age group, referring for the details of its application to the Ministerial Technical Document published two years earlier.
May 26, 2022 (change May 26, 2022 | 14:07)
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