Imagine that someone close to you begins to show unexpected changes: they no longer react the same as before to everyday situations or show the same interest in the activities they used to enjoy. Their words, gestures and even habits change suddenly, without a clear explanation. This is the reality for many people affected by Frontotemporal Dementia (FTD), a neurodegenerative disease that silently affects behavior, personality and language.
FTD is a disease that, despite being less known than Alzheimer’s, has a significant impact on patients and their families. Unlike other types of dementia, it does not begin with memory problems, but with profound changes in behavior and communication skills. According to the Hospital Clínic Barcelona, about 1,000 new cases are diagnosed each year in Spain, mainly affecting people between 40 and 65 years old, a stage in which these changes are especially difficult to face.
Frontotemporal dementia doesn’t just affect patients; It also deeply impacts their caregivers
The first signs of FTD usually manifest themselves in behavior. Affected people may act in an uninhibited manner, behave inappropriately in social situations or show indifference to the emotions of others, as a result of the loss of empathy. It is also common for them to abandon activities and relationships they previously enjoyed, which at first may be interpreted as disinterest or a change in personality.
Another common symptom is altered eating habits, such as a sudden obsession with sweets or overeating. Additionally, many people develop repetitive behaviors, such as walking for long periods without a clear destination. Although these actions may seem meaningless, they are common features of the disease.
As FTD progresses, language is affected. Patients may have difficulty finding words, understanding phrases, or constructing coherent sentences. Over time, these problems worsen, complicating daily communication and making both social and family interaction difficult.
Frontotemporal dementia doesn’t just affect patients; It also deeply impacts their caregivers, who often face great emotional exhaustion. Having support networks, such as specialized groups and organizations, is crucial for caregivers to manage long-term stress and responsibilities. Adapting the environment with clear routines and limited options also helps reduce anxiety and improve quality of life for both the patient and caregiver.
Detecting FTD in early stages makes it possible to plan care and apply strategies that improve the patient’s life. Professionals such as occupational therapists and speech therapists play a key role in maintaining the patient’s independence and improving their communication skills, which contributes to preserving their dignity and autonomy. At a societal level, it is essential to increase understanding of FTD. Patient behaviors are not conscious decisions, so communities and employers must provide supportive and flexible environments for those facing this reality.
Although there is no cure for FTD, research continues to advance. The Hospital Clínic Barcelona explores new strategies to stop the progression of the disease and improve its diagnosis. Studies on biomarkers open the door to earlier and more accurate detection, while treatments are developed that seek to slow cognitive decline. These advances give hope to patients and their families, highlighting the importance of continuing to support research in this field.
#Keys #identify #support #people #frontotemporal #dementia
