Patients with amyotrophic lateral sclerosis (ALS) residing in Reggio Calabria above all lack territorial support, especially with regards to pneumological and palliative management. To address this problem, the Italian Amyotrophic Lateral Sclerosis Association (AISLA) and the Provincial Health Authority (ASP) of Reggio Calabria have started today an innovative training course that focuses precisely on the needs of these patients. The professionals involved will thus have the opportunity to delve deeper into the disciplinary aspects linked to the different phases of the disease from highly qualified teachers. The final objective is to improve the care provided to patients with ALS in the province of Reggio Calabria.
The training course of Aisla and Asp Reggio Calabria on the Pdta Sla and law 219 of 2017 – born from the acknowledgment with Legislative Decree no. 664 of 3 July 2023 of the inter-company Pdta for neurological diseases with neuromuscular involvement (Mninm) between the Asp of Reggio Calabria and the Gom BianchiMelacrino-Morelli – is aimed at surgeons, speech therapists, psychologists, nurses, physiotherapists, rehabilitation technicians and experts in Caadm aids of the Asp reggina. The course, explains a note, is divided into 8 modules which will offer wide-ranging insights into the importance of early and complete management of patients.
“This training course within an inter-company Pdta – states Francesca Genovese, national councilor and president of Aisla Reggio Calabria – represents a significant step towards a better quality of care for patients suffering from ALS in our community and demonstrates the commitment together with institutions and associations to face this challenge. The resources invested by Aisla Calabria are important and we hope that professionals will be able to seize this important professional growth opportunity offered to them”.
The training course will cover topics related to the management of the symptoms and complications of ALS, such as sialorrhea, spasms, dysphagia and respiratory failure, but also the correct use of medical devices and assistive technologies. The psychological and emotional aspects linked to the disease will also be addressed, in order to provide adequate support to patients and their families. A module will therefore be dedicated to law 219/2011 and shared care planning, which guarantees self-determination on the treatment options available and full respect for one’s rights and the dignity of the sick person. The training proposal – the note details – involves constant accompaniment lasting 3 years, with tutoring carried out on local teams through theoretical and practical tools, even remotely. The best experts from the reference centers for the treatment of ALS in Italy will be involved, in order to train healthcare professionals competent in the care and management of people with this pathology.
“Training represents the soul of the company culture – underlines Lucia Di Furia, general director of ASP Reggio Calabria – this project represents a significant step towards a better quality of care aimed at fragile patients suffering from ALS. The company considered it important to commit , in joint manner with Aisla Reggio Calabria, to organize a qualified ECM course. The objective is to guarantee the most complete training possible for all professionals who assist patients suffering from ALS, allowing them to be activated throughout the entire territory of the Asp” of Reggio Calabria. “the inter-company Pdta, improving home care while respecting the creation of the home as a place of care”.
The training course, which will end on 18 October 2024, includes classroom lessons and will entitle participants to 50 credits, recognized nationally, confirming the association’s commitment to providing high-level specialized training. Since 2008, in fact, Aisla has offered free and specialized training on the management and care of people with ALS. To date, it has created 352 training modules in which 8,200 learners participated. In 2022 alone, 560 health professionals were trained. Further information is available on aisla.it.
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